Aiden was born on December 15, 2012. He was born full term and healthy. After just one night at home, Aiden was rushed to Seattle Children’s Hospital for very low blood sugar. After a couple weeks, he came home without a diagnosis. At around 3 months of age, Aiden was rushed to the hospital again for being very anemic. It was then that the doctors performed a bone marrow biopsy and we initially heard of Pearson’s Syndrome. The diagnosis was confirmed when Aiden was 5 months old.

Throughout his short life, Aiden received numerous blood transfusions and endured many medical procedures. But, to us, Aiden was our perfect little boy. When he was feeling well, his favorite things to do were playing with balls, chewing on toys, and just seeing new things. He was the most content on our arms, looking at people and things around him. Aiden was our spotlight and his presence brightened all our days. We were amazed by his resilience, his strength, his bravery, and his ability to laugh, love, and play amidst all of the challenges he had faced.

While we lost our baby on February 21, 2014 at just 14 months old, I am so happy to see that organizations like The Champ Foundation is getting the word out! We need a cure for Pearson’s Syndrome!