CALL FOR PROPOSALS: PEARSON SYNDROME RESEARCH NETWORK CENTERS OF EXCELLENCE

June 01, 2020

The Champ Foundation supports research toward better treatment and a cure for Pearson syndrome (PS) and single large scale mitochondrial deletion (SLSMD) disorders. To support the field, The Champ Foundation is formalizing the Pearson Syndrome Research Network and establishing the Champ Foundation Registry (CFR). Participating centers will enhance patient care, augment natural history knowledge, and contribute to a widely accessible, robust dataset. This data will inform future studies in academia and industry.

Individuals interested in spearheading a PS effort at their institution should submit a proposal via email to [email protected] Proposals will be considered and funded by The Champ Foundation on a rolling basis. We encourage interested individuals to reach out to us, prior to sending a proposal. Participating centers will agree to see Pearson syndrome patients for clinical evaluation, develop and provide standardized clinical care, contribute to Champ Foundation Registry, and closely collaborate with other centers in the Pearson Syndrome Research Network.

PROPOSAL REQUIREMENTS

1. Introduction letter, not to exceed 1 page

2. Roster of individuals participating, to include specialist clinicians and research coordinators

3. Detailed annual budget, not to exceed $35,000 per year for up to 2 years

PROPOSAL CONSIDERATIONS

1. Multi-disciplinary team with experience in mitochondrial disease

2. Qualifications, experiences, and abilities of the team

3. Willingness and ability to collaborate with the PSRN

4. Institutional resources available, including information technology and administrative

5. Clarity and thoughtfulness of the application

6. Previous engagement with The Champ Foundation’s efforts

SUBMISSION STEPS

• Proposals will be evaluated on a rolling basis

• Email a complete proposal to [email protected]

REVIEW DETAILS

• Grant decisions are ultimately made by the Board of Trustees acting on recommendations of the President and Vice President.

Please contact Jeff Reynolds at 727-871-2667 or [email protected] if you have any questions about The Champ Foundation, the PSRN, or the application process.