We have been overwhelmed with the amount of support we have received over the past few days. Thank you for the texts, emails, messages, and phone calls.
So many people have asked what they can do to help and soon we will be asking for donations to find a more effective treatment for Pearson Syndrome. Unfortunately, it takes a few months to set up a 501(c)3 non-profit organization.
In the meantime, donate blood! William has received 7 transfusions. We are grateful to the people who have donated in the past, and we are hoping to pay it forward.